A Vancouver Island household is talking out after their 11-year-old son died in hospital and so they say it by no means ought to have occurred.
“He was a baby who liked life, was stuffed with vitality, typical boy that wished to be engaged with completely different actions and be with associates,” mother Nikki Robbins informed International Information.
“He liked his college. He loved the outside and he had a dream of being a pilot in the future.”
Brayden was his dad and mom’ solely baby.
“From the day he was born, he liked, he liked issues that had been within the sky,” Robbins stated.
“One among his first phrases when he was born was gentle. He informed me he got here from the sunshine. And so he had this infatuation with issues that had been above … and planes had been one among them, birds.”
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Robbins stated that Brayden was born with a kind of cerebral palsy after he suffered a stroke in utero.
Whereas he was totally practical and unbiased, Robbins stated her son did require some physiotherapy, occupational remedy and assist to maintain his physique sturdy and to discover ways to adapt along with his physique.
“All his life, he was part of the well being care system,” she stated.
Brayden Robbins was 11 years outdated when he died.
Supplied to International Information
When he was 4, he was recognized with seizures and underwent surgical procedure, which cleared him of the seizures.
“On account of his mind surgical procedure from the seizures, he did have a bout of hydrocephalus, which is fluid buildup within the mind and he had a process accomplished the place they did an inner stent in his mind that allowed the fluid to maneuver by way of the spinal column by way of the mind and again right down to the spinal column in order that the fluid wouldn’t construct up and trigger issues,” Robbins added.
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She stated there have been no issues after that surgical procedure.
About 5 years in the past, he developed a mind bleed from falling off a playground and hitting his head, however he recovered.
In August 2024, Brayden underwent surgical procedure on his proper arm to assist the tendons in his hand transfer extra simply, and he continued with physiotherapy and occupational remedy.
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“However then what occurred was in November of 2024, on the twelfth, he developed signs that had been very completely different,” Robbins stated.
“And so he began to complain of a headache, in addition to this, like his neck was being pulled to at least one facet uncontrollably, so he couldn’t management the motion of his head. And he stated he was having a extreme headache with tingling in his nostril.”
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His dad and mom took him to the emergency room in Comox.
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“The ER physician consulted by telephone with a pediatrician that was on name and the pediatrician didn’t are available in and see Brayden,” Robbins stated.
“However he was recognized with torticollis, so muscle spasms within the neck is mainly what they recognized him with and he was despatched house with a muscle relaxant, Tylenol, ibuprofen.”
Robbins stated that when her husband expressed concern about their son, given his medical historical past, they had been despatched house with out getting a CT scan or any diagnostic testing.
“Though there was compassion and care there, we didn’t really feel that … the extent of our concern was taken significantly,” she added.
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Over the following few days, the household contacted Brayden’s pediatrician, stored him house from college and his signs appeared to enhance, though he nonetheless complained of a headache.
Six days later, Robbins stated that Brayden’s signs got here again even worse and he was stiff and screaming in ache.
He was admitted immediately however Robbins stated the hospital claimed to not concentrate on Brayden’s medical historical past.
“I requested for a CT scan various instances in the course of the time there,” she stated.
“And it was, I’m undecided if it was heard or dismissed… to be trustworthy. I can’t say. However I simply know that it wasn’t accomplished.”
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Brayden slipped right into a coma and the pediatrician ended up video conferencing with a physician at Victoria Kids’s Hospital to take away fluid from his mind.
“The physician informed us that he would have died in the event that they hadn’t accomplished that,” Robbins stated.
“After which a pair hours later, they needed to do it once more as a result of his coronary heart charge was simply going too excessive.”
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They had been additionally informed that there was no transport workforce obtainable because of the climate and staffing ranges. There was additionally no pediatrician on employees that night time.
“From our expertise, there was a breakdown in communication for us,” Robbins stated.
“It’s a must to perceive that regardless that I’m a nurse … I, in that second, I’m a mom and … my son was struggling and I wished to nurture and console him.
“My job in that second was to not be the nurse, so I put full belief within the well being care suppliers there.”
When Brayden did lastly obtain a CT scan, they realized he had thrice the quantity of fluid on his mind.
He handed away at 9:55 a.m. on Nov. 19, about 15 hours after he arrived on the hospital.
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“We consider that if he had obtained a CT scan earlier, that he would nonetheless be alive immediately,” Robbins stated.
“They’d have recognized him, they might have been in a position to assist him with what he wanted and transport him to the place he wanted to be to obtain the care that was mandatory.”
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Brennan Day, the MLA for Courtenay-Comox and the official Opposition critic for Rural Well being and Senior’s Well being, stated the Ministry of Well being must do a deep dive into how the system failed Brayden and his household.
“There’s nobody factor that led to this, however a sequence of occasions mixed with overtaxed and understaffed ER ended up leaving this baby behind,” he stated.
Day stated that he has heard from emergency room docs and nurses within the North Island area which are, at instances, caring for 30 sufferers every.
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“So you possibly can solely think about the strain that these nurses and docs are beneath to attempt to do their greatest in a system that’s getting ready to collapse or has collapsed,” he stated.
“Let’s be practical with what this implies. This isn’t a failure of the docs or the nurses. On this case, it is a failure of the system to adequately defend them to do their jobs and ship care in a significant means in British Columbia.”
International Information reached out to the Ministry of Well being for remark however didn’t hear again in time for deadline.
Robbins stated they need to see various modifications occur following her son’s dying, together with necessary pediatric emergency coaching, formal family-centred communication protocols to make sure households are heard and documented, standardized use of the Provincial Transport Community (PTN) for complicated pediatric instances and speedy funding in pediatric transport staffing and response capabilities.
The household ultimately obtained a essential incident report however Robbins stated it lacked accountability or dedication for change.
“We simply need locations to personal the place they will do these higher,” she stated.
“It’s appalling, what’s occurring proper now and it led to the dying of our son… we’re harm, we’re outraged, we’re unhappy and our lives are without end modified.”